Protection of Human Rights in the Context of Fight against Gene Doping

Authors

  • A.I. Redkina Kutafin Moscow State Law University (MSAL) Автор
  • O.A. Shevchenko Kutafin Moscow State Law University (MSAL) Автор
  • D.I. Vorontsov Kutafin Moscow State Law University (MSAL) Автор

DOI:

https://doi.org/10.22394/1726-1139-2020-8-67-77

Keywords:

sport, sports law, gene doping, genetics, bioethics, human rights, gene therapy

Abstract

This article examines issues related to the protection of human rights in the context of the fight against the use of gene doping. The fact of using gene therapy in relation to a person already includes a significant range of potential ethical problems, including probable health risks, the degree of awareness of the patient's consent to perform certain manipulations, as well as the long-term consequences for a person's life, and, which is equally important, for future generations. At the same time, the problems of the use of gene doping in relation to athletes significantly aggravates and complicates the process of building regulatory approaches. The article notes the particular susceptibility of the athlete's right to health care in the context of the problem of gene doping. The paper studies the features of the implementation and protection of the human right to protect health and the right to privacy, including legislation aspect of biomedicine and bioethics, as well as taking into account the difficulties associated with the identification of the use of gene doping. Conclusions regarding possible areas for improving legal regulation in this area, among which, strengthening or detailing the legal regulation of the provision of high-tech medical care, properly informing athletes, coaches and other sports professionals about the possible risks of applying genetic engineering methods to humans, proper regulation of testing procedures, toughening criminal liability and expansion of the subject matter of such crimes are formulated.

Downloads

Download data is not yet available.

References

Афанасьева О. В. Право на неприкосновенность частной жизни. Укрепляет ли его закон о персональных данных? // Общественные науки и современность. 2011. № 6. С. 76-88.

Квинт В. Л. Концепция стратегирования. T. II. СПб.: ИПЦ СЗИУ РАНХиГС, 2020.

Шадрин С. А. Содержание права на неприкосновенность частной жизни по российскому и европейскому законодательству // Актуальные проблемы российского права. 2018. № 9 (94). С. 208-217.

Anderson W. F. Human Gene Therapy: Scientific and Ethical Considerations // Journal of Medicine and Philosophy. 1985. Vol. 10. N 3. P. 275-292. URL: https://www.ncbi.nlm.nih.gov/pubmed/3900264 (дата обращения: 01.06.2020).

Aith F. M. A. Anti-doping control and public health: limits to the exposure of human health to risk in the name of sporting glory // Revista de Saúde Pública. 2013. Vol. 47. N 5. P. 1-4. URL: http://www.scielo.br/pdf/rsp/v47n5/en_0034-8910-rsp-47-05-1015.pdf (дата обращения: 01.06.2020).

Barilan Y. M., Brusa M. Human rights and bioethics // Journal of Medical Ethics. 2008. Vol. 34. N 5. P. 379-383. URL: https://www.ncbi.nlm.nih.gov/pubmed/18448721 (дата обращения: 01.06.2020).

Chneiweiss H., Hirsch F., Montoliu L. et al. Fostering responsible research with genome editing technologies: a European perspective // Transgenic Research. 2017. Vol. 26. P. 709-713. URL: https://link.springer.com/content/pdf/10.1007/s11248-017-0028-z.pdf (дата обращения: 01.06.2020).

Fallahi A., Ravasi A., Farhud D. Genetic doping and health damages // Iranian Journal of Public Health. 2011. Vol. 40. N 1. P. 1-14. URL: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3481729/ (дата обращения: 01.06.2020).

Friedmann T. Genetic therapies, human genetic enhancement, and … eugenics? // Gene Therapy. 2019. Vol. 26. P. 351-353. URL: https://www.nature.com/articles/s41434-019-0088-1.pdf (дата обращения: 01.06.2020).

Hoff D. Reflections on "doping in sport" and "doping in society" // Doping and Public Health. Ed. by N. Ahmadi, A. Ljungqvist, G. Svedsäter. Abingdon: Routledge, 2016. XI. P. 49-63.

Houlihan B. Civil Rights, Doping Control and the World Anti-doping Code // Sport in Society. 2004. Vol. 7. N 3. P. 420-437. URL: https://doi.org/10.1080/1743042000291712 (дата обращения: 01.06.2020).

Kritikos M. What if gene editing became routine practice? // European Parliamentary Research Service. 2018, October. P 2.. URL: http://euromind.global/wp-content/uploads/2019/02/What-if-gene-editing-became-routine-practice.pdf (дата обращения: 01.06.2020).

Miah A. Genetics, bioethics and sport // Sport, Ethics and Philosophy. 2007. Vol. 1. N 2. P. 146-158. URL: https://www.tandfonline.com/doi/abs/10.1080/17511320701425181?journalCode=rsep20 (дата обращения: 01.06.2020).

Popstefanov G. L. Gene Doping: The Game Changing Technological Advancement of the Next Generation // Law School Student Scholarship. № 290 2013. P. 13. URL: https://scholarship.shu.edu/cgi/viewcontent.cgi?article=1290&context=student_scholarship (дата обращения: 01.06.2020).

Rigozzi A., Kaufmann-kohler G., Malinverni G. Doping and fundamental rights of athletes: comments in the wake of the adoption of the World Anti-Doping Code // International Sports Law Review. 2003. N 3. P. 39-52. URL: https://lk-k.com/wp-content/uploads/Doping-and-fundamental-rights-of-athletes-Comments-in-the-wake-of-the-adoption-of-the-World-Anti-Doping-Code.pdf (дата обращения: 01.06.2020).

Saghezchi S. M., Naini M. T. A Legal Approach to the Interaction between Sports and Human Rights // Mediterranean Journal of Social Sciences. 2016, May. Vol. 7. N 3. P. 196-205.

Smith K. R. Gene therapy: theoretical and bioethical concepts // Archives of Medical Research. 2003. Vol. 34. N 4. P. 247-268. URL: https://www.ncbi.nlm.nih.gov/pubmed/12957520 (дата обращения: 01.06.2020).

Yotova R. The Regulation of Genome Editing and Human Reproduction Under International Law, EU Law and Comparative Law // Nuffield Council of Bioethics. URL: https://www.nuffieldbioethics.org/assets/pdfs/GEHR-report-on-regulation.pdf (дата обращения: 01.06.2020).

Downloads

Published

2020-12-15

Issue

Section

Articles

How to Cite

Redkina A., Shevchenko O., Vorontsov D. Protection of Human Rights in the Context of Fight against Gene Doping // Administrative Consulting. 2020. no. 8. P. 67–77. https://doi.org/10.22394/1726-1139-2020-8-67-77